Build your own time machine

Category: , By panda_eyed
Tis May 1st and it has been ages since I last posted - I'm so sorry, esp. to those who worried because my last post was veering on the depressive. I didn't mean to scare anyone, and, looking back at it, it was a terrible, dark post, which I'm ashamed to have posted. I guess that the effect that's ME/CFS has on me at its lowest points.

Things have been looking much brighter since then and I'm happy to say that I haven't felt as low as that since, well, the last time I blogged. There is a boy on the scene, and he keeps my spirits up and makes me smile so much that I forget the bad bits and the pain. Laughter, and the giddy sensation of a new relationship, it seems, really is the best medicine.

There is much to tell, much to catch up on, but the reason I decided to blog today is because I read an inspiring little story. In recent months, I've forgotten the reason I like writing and blogging, but I chanced upon this article at work - in all places, in the Nature journal - and it was such an enchanting piece of writing that it made me want to write again. What I love about the story is that, although the Nature journal is very sciencey, very matter-of-fact, this story is uncharacteristic in that it is simply a very sweet, winsome little piece that takes a quantum physics theme and yet doesn't contain any science. The author writes that building your own time machine is merely putting together a set of memories which are unique to you. There's a lovable little aside at the end which states "Igor Teper [the author] teaches old atoms new tricks at temperatures near absolute zero. He also writes stories, occasionally". You can read it here.

Inspired by this story, I wanted to 'build' my own time machine. There are so many moments, many of them recent, that I have wanted to remember exactly, to somehow keep them locked up inside my mind and never forget. That's an impossible task, unless you're blessed (or cursed?) with a photographic memory, and, for me, writing things down is a way of doing that - words are immortal, after all.

I realise that if I sat here and wrote down my 'time machine' moments, I would be here forever. So I'm going to start small for now and come back and add to these moments. And seeing that it's my little sister's birthday in precisely 4 days time, what better moment to start with than the time around when she was born?

I was 6 years, 11 months and one week old, and I'd been begging my mum for a baby sister or brother for years. I didn't like being an only child and really wanted someone to play with and nurture. My mum's younger sister had come to stay and help out my mum around the house. I woke on this particular morning, 5th May 1990, to a silent and empty house - where were my parents? Feeling slightly anxious, I went and shook my auntie awake, who told me that my parents had gone to the hospital because my brother or sister was on the way. She said I'd have to be patient and I'd get to meet the baby later, then promptly went back to sleep. That morning felt like the longest EVER -- I remember not knowing how to pass the time, wondering why it took so long to get a baby out and why I couldn't be there with my mummy (little did I know). A few hours, but what, to me, seemed like an eternity, later, my dad came back and told me that I had a baby sister. I remember feeling relieved that it was a girl (boys are 'urgh' at that age :) and pleased that I'd have a sister to play with and show off.

I was already itching to get down and see my mummy and new baby sis, but I was made to eat some lunch (Daaad..!). I remember being nervous in the clinical setting of the hospital, with all it's strange smells and noises. Seeing my mum's familiar but tired face amongst all the strange ones was such a relief. I distinctly remember seeing my baby sis for the first time - curiosity and anticipation mixed with a little bit of apprehension. She had so much hair already - just like mine, thick and dark - and a little wrinkled face with dark skin and a tiny nose. I remember not wanting to touch her for fear of hurting her; she was so fragile. But looking at that delicate little thing in my mum's arms, so quiet and peaceful, I knew I'd protect her forever. Because that tiny little person was my little sis.

My baby sis turns 18 in a few days time. She's turned into a wonderful person and has achieved so much already. I'm so proud of her. I know it's still a little early, but happy 18th birthday, little one. Your big sis loves you lots..

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The drugs don't work

Category: By panda_eyed
I'm having a really bad day. The tiredness and pain of CFS/ME is really starting to get to me. This morning, I could barely walk because my hips ache and throb with every step and it feels like someone has replaced my blood with concrete whilst I was sleeping. And energy? Just the simple act of putting clothes on made me hyperventilate with exhaustion.

I know I must keep positive, I know I must keep active so that all the progress I've made with pacing therapy these last few months don't come to nothing, so that I don't end up back at square one. I know I should count my blessings, that I don't have symptoms as bad as some people get, that I'm still able to get around without falling into a tired stupor. Somedays though, I'm so tired and this is one big uphill struggle. I just want to lay my head down and make the pain and the tiredness go away. I don't want to have to fight to be normal anymore.

At the end of last year, after refusing for more than a year to take medication for CFS, I finally got to a point where I was just too tired and too ill and knew that I couldn't keep fighting the disease with mere positivity and determination. One tiny blue pill every night was all it took for me to suddenly feel like I was back in the land of the living. If I had been religious, I would have gotten down on my hands and knees and praised the lord. I'm so glad I gave in because, you know what, it's alright to admit defeat.

With the help of that miracle tablet, I suddenly had my life back. I could go shopping without falling down half dead afterwards. I could go for long walks. I could go dancing. Of course, it wasn't all roses. I certainly still had bad days, still had to take it easy more often than not, but it wasn't half as bad as it was before. However, this month, the effect of the pills have started to wane, and, now, I feel like I did before I started taking them.

It's been the best 2/3 months I've had since I started to get ill with CFS, and just when I was starting to feel like I would finally overcome the disease, I feel like I'm back where I started. It's so spirit-breaking. There may be other medications, there may be other treatments that would help, but right now, I'm just exhausted and I don't want to keep fighting. It's just one big never-ending battle, and I've forgotten the reason why we went to war.
 

Calendar

Category: By panda_eyed
I finally got round to selecting pictures for my calendar. I used Mylozmom and Nikki's ideas - pics that make me smile/pics from my travels. I used BigHugeLabs.com to transform the pics into an actual calendar - it was easy.

January February

March April

May June
July August

September Oct
November December
Example:

If you have a minute or so, stop by Divastar's blog and leave her some kisses. The puppy who was so kind to me last week sadly passed away on Saturday night. He'll be missed.

 

Still smiling

Category: By panda_eyed

I'm not having a great week in terms of ME/CFS symptoms, but I'm trying my best not to let it affect my life and my mood. It hasn't been difficult to raise a smile this week, and here's why:

  • A Valentine's card from my "big black man, woof woof" from the lovely B [Divastar's doggy], despite the poor puppy being so sick this week. Get well soon, B!
  • A parcel and a postcard for Munch, also from B (isn't he generous and thoughtful? Aww!). Thank you lovely! Munch is so chuffed! :)
  • These gorgeous flowers (one of my all time faves):
  • Looking forward to spending the weekend with some good friends, whilst getting as much rest in as possible, of course!

Hope you all have a great weekend. Be good, or not ;)

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Midweek random thoughts

By panda_eyed
  • I ate waaay tooo much over the Chinese new year weekend. Honestly, I think my stomach has expanded to twice its normal size. Bleurgh.
  • It's February the 13th and I still don't have a calendar. Call me stingy, but I didn't want to pay £10 for one at Christmas, and everything in the sale has been rubbish. I think I'll collect some nice pictures and print my own one. No idea what the theme should be though - any ideas?
  • I miss my curls. Ever since I straightened my hair, they haven't been the same. Now it's just wavy and lank.
  • Despite my new year's binge feast, my ex-boss told me I need to eat more. I think I laughed in her face. She needs new glasses.
  • I am possibly a little too preoccupied with the way I look. I just noticed that 3 out of 4 points above are quite self-obsessed. Oh god, I'm becoming one of those girls.. :( Kill me now!
  • Despite my contempt for Valentine's day, I do have a valentine this year *blush* And now to counteract that, some amusing anti-Valentine's cards (thanks P).